I’m sitting and waiting for Frank to fly in to Chicago so he can help me drive back from a very long weekend of soccer and a work conference.

Normally I would jump in the car and go, but my body just will not allow it.

My brain is feeling betrayed by the abilities of my body.

Bored but can’t move.

Tired but not tired.

Engaged yet frozen.

I have never been more frustrated than I am right now. At least when I was critically ill I felt terrible – I didn’t want to do anything even if I could.

Now, I want to do things but my body says no.

This is NOT how I live my life.

#cancersucks #getoutofmyway

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